Monday, July 13, 2009

Running for the Twins

Every year we receive many requests for donations to worthwhile causes. The last five years, my wife Carol, my daughters Courtney, Kylie and I have devoted our efforts to supporting a cause that is very close to our hearts. Our good friends Bridgette and Tony DeBoe have eight-year old twin daughters who suffer from Thalassemia, a blood disorder affecting the body's ability to produce hemoglobin. There are many different kinds of Thalassemia, from mild to life threatening. Alexia and Kailyn suffer from the most severe form and since the age of 3 require monthly blood transfusions to survive. Unfortunately, these transfusions are just a treatment and not a cure.

Each day they must also take medicine to remove the excess iron caused by the transfusions. Modifications to this medicine must continually be made for it to remain effective. The removal of their spleens a few years ago has helped the girls in their battle, but unforunately has presented other issues with dealing with bacterial infections and fevers. While a bone marrow transplant remains the most viable option for a possible cure, there are tremendous risks that accompany this process and there are no guarantees it will work. Also a match would need to be found. The costs associated with both fighting this disease along with looking for a cure, are astronomical and continue to rise.

The twins continue to live life to its fullest: they dance, play soccer and hope to start cheerleading this year. The Deboes continue to battle this terrible disease and hope and pray that research will someday produce a cure.

Four years ago we thought a great way to help out this wonderful family would be to ask family, friends and members of the Bridgewater and outlying communities to sponsor me in my first running of the Falmouth Road Race. This is how the “Running for the Twins” was started. From running on my own the first year, to 4 runners in the second year, and 10 runners the last 2 years, we continue to get wonderful support from our friends, family and neighbors throughout the Bridgewaters and all over Massachusetts and also from the generous race directors of the Falmouth Road Race. This year 11 friends of mine will be joining me in running the 7.1-mile race in Falmouth on Sunday August 9, 2009 in support of these beautiful and courageous little girls.

If you would like to sponsor us in our Running for the Twins V race, please mail your donation to the address below or contact me and I will be more than happy to stop by and pick it up. Any donation large or small would be greatly appreciated. Checks should be made payable to the Alexia & Kailyn DeBoe Family Fund. This fund was set up by the twins’ grandmother at Bridgewater Savings Bank. Every dollar donated goes directly to the family to help offset medical and other related expenses not covered by their health insurance; my team and I absorb all the costs associated with the race and fundraising efforts. Please feel free to share this letter with your family, friends and neighbors who may be interested in supporting our team and the twins.

I realize there are many worthwhile causes so please do not feel obligated in any way. What I will ask is that you keep Alexia and Kailyn in your thoughts and prayers.

Keith Buohl
10 Fieldcrest Drive
Bridgewater, MA 02324

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