Wednesday, July 13, 2011

Running for the Twins VII

Here is a message from resident Keith Buohl about his efforts in Running for the Twins VII.

I am again reaching out to my family, friends and the Bridgewater community for your support in the seventh and final Running for the Twins campaign. My wife Carol, daughters Courtney and Kylie, and I continue our efforts in raising funds to assist the family of Alexia and Kailyn DeBoe as they battle the rare disease Thalassemia, a blood disorder affecting the body’s ability to produce hemoglobin.

What started as a kitchen table conversation seven years ago on how to help the DeBoe family, has turned into seven years of overwhelming love, generosity and support. Running for the Twins VII will be the finale of this testament to the human spirit. To all those who have opened their hearts and been so generous during this journey, we say thank you and God bless you. Special thanks to Joanne and Scott Thorud, who will be running the Falmouth Road Race with me this year for the fourth time, for their generous gifts of time and fundraising efforts over the years.

The twins must continue to receive monthly blood transfusions to fight the effects of this life threatening disease. Unfortunately, these transfusions continue to be only a treatment, not a cure. They still have to take medicine daily to remove the excess iron in their blood caused by the transfusions and this medicine must be modified constantly to remain effective. The funds we have raised help offset these rising costs and will also be used when a cure is found.

The twins continue to live life to its fullest: they dance, play soccer and both are cheerleaders. The DeBoes continue to battle this terrible disease and hope and pray that research will someday soon produce a cure.

If you would like to offer support and sponsor us in our Running for the Twins VII race, please send a donation in care of me at the address listed below. Any donation large or small would be greatly appreciated. Checks should be made payable to the Alexia & Kailyn DeBoe Family Fund. Every dollar donated goes directly to the family to help offset medical related expenses not covered by their health insurance; my team and I absorb all the costs associated with the race and fundraising efforts. Please feel free to share this email with any family, friends and neighbors. With economic times the way they are, we are trying to raise support from all over to continue our fight.

We realize there are many worthwhile causes as well as the tough economic times we are all facing, so please do not feel obligated in any way. What I will ask is that you continue to keep Alexia and Kailyn and their family in your prayers. Thank you so much from the bottom of our hearts.

Keith Buohl

10 Fieldcrest Drive, Bridgewater MA 02324


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